Double your donations on 4 December with the Big Give
The Big Give is here again…
LOG ON TO THE BIG GIVE WEBSITE AT 10AM GMT ON 4th, 5th OR 6th OF DECEMBER. THIS LINK WILL BE READY TO RECEIVE YOUR DONATION AT THAT TIME
You may know that 4 December is our once-a-year-chance to double the value of any contribution you make to help fund NA research and our patient support work. Patients like our own daughter Alexandra lead lives that have been severely affected by neuroacanthocytosis, but our work is helping her and so many other patients with NA group diseases, including McLeod’s syndrome and Huntington’s-like 2.
The research we fund is currently pursuing two, extremely promising lines of inquiry (see Ruth Walker's article, Stresa Symposium reveals significant insights for NA research, in this issue) and your gift, of any size, will make a vital contribution.
Just fill in the simple form with credit card details, and your donation will be doubled, even though contributions do not show up immediately on the Big Give website.
We have excellent news this year: an extra special matching fund of £5,000 ($8,000) means that regardless of whether you are able to make a donation through the Big Give website, we will be able to match the first £5,000 ($8,000) in donations, even those you make directly to the NA Fund.
If you can give online at the Big Give, that's wonderful! If you would prefer to donate direct, please use the following details:
For dollar donations of over $500
It is best to send these to us at 32 Launceston Place, London W8 5RN, England as a check payable to “Anglo-American Charitable Foundation”.
For dollar donations less than $500
These dollar donations can be sent to 32 Launceston Place, London W8 5RN, England as a check payable to “NAFund”.
For any donations in Euros
Please send these directly to our German colleagues. Donations should be made to our chief NA researcher in Hannover:
Dr Florian Wegner, Medischinische Hochschule Hannover
Acct no 370 371, Sparkasse Hannover
BLZ 250 501 80, Remarks :Fonds 1955 1261
IBAN: DE 15 250 501 80 0000 370371
The Big Give makes a big difference to the NA Advocacy. Thank you for any amount, big or small, that you can give this 4 December!
Stresa Symposium reveals significant insights for NA research
by Ruth Walker
We are delighted to report some encouraging progress from NA researchers funded by the Advocacy, including vital new insights into the function of chorein, the coded protein of the chorea-acanthocytosis (ChAc) gene VPS13A first discovered 13 years ago. The developments were reported at News Frontiers in Neuroacanthocytosis and Neurodegeneration with Brain Iron Accumulation: From Benchside to Bedside.
Charity concert a success in London
A very special fundraiser was held in November in London, with 80 guests gathered for an evening at the private home of Hazel and Vernon Ellis to enjoy a concert by the Linos Piano Trio. Konrad Ellas-Trostmann (violin), Vladimir Waltham (cello) and Prach Boondiskulchokd (piano) performed the CPJ Bach trio that they recently recorded and two marvellous pieces by Robert Schumann and Ludwig van Beethoven. The Schumann and Beethoven were written by composers with profound difficulties as a tribute to NA patients.
A warm tribute to Prof. Hans Kretzschmar
It is with great sadness that we notify our readers about the death of Prof. Hans Kretzschmar of the Munich Center for Neuropathology and Prion Research, a man who did a tremendous amount for neuroacanthocytosis patients.
Prof. Kretzschmar passed away at the age of just 61 on January 12, 2014 after a short course of a treacherous illness that he had carried with amazing grace.