Rare Disease Day 2022 Banner


Thank you for reading this latest issue of NA News. We are pleased to share this 38th issue on a very special day, Rare Disease Day 2022. Created in 2008 , Rare Disease Day seeks to raise awareness of the needs of patients around the world with rare diseases. Per its website, the goal is "to work towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease."  Rare Disease Day is coordinated by EURORDIS with over 65 patient organization partners and is observed every year on 28 February (or 29 in leap years). Learn more at the Rare Disease Day website at


As we celebrate Rare Disease Day, please find this issue chock full of news from patients, timely updates on research, communication tips for NA patients from a Speech Therapist, and an important "save the date" for the next VPS13 Zoom Forum. We also include the results of a recent survey of patients, the inaugural annual report for NA-USA, and a call for new trustees for NA Advocacy and new board members for NA-USA.  Go ahead. Take a peek.

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