This autumn marks the end of Neil Price’s tenure as Trustee of Advocacy for Neuroacanthocytosis Patients, a role he held over three full mandates over the last decade. 

Neil’s thoughtful, collaborative work, in particular his oversight of the Rathbone special account for the Glenn Irvine Prize, has been invaluable. His financial expertise and steady counsel supported our charity through a transformative period marked by growth, resilience, and a deepening of our mission to support patients and families affected by NA. 

We are deeply grateful for the time, care, and knowledge Neil brought to our charity. His legacy is woven into the milestones we’ve reached and the lives we continue to touch. 

As Neil steps down, the Board is now seeking to appoint new Trustees to help guide our future work. We are particularly interested in individuals who can contribute professional skills and experience to strengthen our fundraising and strategic development. Expressions of interest are warmly welcomed, and further details will be shared in due course. 

Thank you, Neil, for your service, your wisdom, and your friendship.