The NA Advocacy USA Welcomes New Trustee
Additional Trustees Still Needed
by Joy Willard-Williford

Julie Kerner is the founder and lead consultant at Kerner Solutions LLC. Under her leadership, companies create portfolio and platform strategies, develop countless therapeutic programs, and launched multiple therapies. Previously, Julie worked at Fulcrum Therapeutics and Aliada Therapeutics where she developed R&D long range plans and drove organizational change. Prior to that, she worked at AVROBIO and Wave Life Sciences where she implemented organizational excellence initiatives and oversaw creation of an emerging Ophthalmology therapeutic area. Julie’s first industry position was at Biogen where she started the R&D strategy group, worked in global marketing and New Product Planning group.


Over her career, Julie has discovered a love for strategic planning and building from the ground up. She is committed to patient centricity and advocacy, sitting on the boards of Newton Wellesley Hospital, National Braille Press, as well as Neuroacanthocytosis Advocacy USA. Julie has a BS in BioPsychology from Tufts University and a PhD in Neuroscience from the Sackler School of Graduate Medical Sciences, Tufts Medical School in Boston, Massachusetts.


While welcoming Dr. Kerner, both The Advocacy for NA Patients and Neuroacanthocytosis Advocacy USA continue to cast the net for additional trustees. These important individuals work together to accomplish the goals of their respective organizations. Both NA Advocacy, based in London, and NA-USA based in Florida, are looking for a few good individuals with a heart for finding a cure for VPS13A and McLeod syndrome and for supporting individuals with these disorders, and their families. 


At its most basic, to truly be an effective nonprofit trustee or board member requires having good character, a strong commitment to the cause, the gift of time, and a willingness to use personal and professional resources to advance the organization's mission.  If you would like to learn more about the role of a trustee/board member with NA Advocacy, please contact Ginger Irvine at For information on NA-USA, please contact Susan Wagner at or Joy Willard-Williford at


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