New resources for NA patients and caregivers
In addition to the resources that we always show in the front page margin of NA News, there are several new information sources you may find valuable.
Swallow safely: Medical Practitioners in the US have been working with the Parkinson's community to launch a new book, "Swallow safely: how swallowing problems threaten the elderly and others. A caregiver's guide to recognition, treatment and prevention." Like Parkinson's patients, NA patients frequently suffer difficulty in chewing and swallowing, and caregivers may find many of the insights pertinent to their situation. More information is available at SwallowSafely.com, or read the full story about the book launch, including interviews with co-authors Drs. Roya Sayadi Joel Herskowitz, at the Northwest Parkinson's Foundation.
Physiotherapy Guidance Document: The European Huntington's Disease Network has published this comprehensive handbook, and due to the similarity of symptoms between NA and HD, the insights on areas like the potential benefits of physiotherapy may be quite useful for NA patients' physiotherapists. The handbook also looks at physiotherapy management and treatment. Contact Lori Quinn by email for further information.
A Caregiver’s Guide to Huntington’s Disease: Available online and designed to support the caregiver, this Huntington's Disease resource is equally applicable to NA caregivers. It covers topics like Living with a Movement Disorder, Nutrition, Cognitive Problems and Working with Medical Professionals. Download the Caregiver’s Guide to Huntington’s Disease as a PDF file or contact the Advocacy and we will send you a copy.
CaringBridge: this resource provides free websites that connect people experiencing a significant health challenge to family and friends. CaringBridge websites are designed to offer a personal and private space to communicate and show support; authors can add health updates and photos which let them share their story, and visitors can leave messages in the guestbook. For more information visit the CaringBridge website