The campaign for Rare Disease Day 2020 is now underway! The Rare Disease Day team at EURORDIS is building the campaign around ‘Reframe Rare’ – reframing what it means to be ‘rare’ to show that rare is many, rare is strong, rare is proud.

You can find out more about Reframe Rare here. Anyone holding an event has been invited to post information about it. This means all of us can let others know about a planned coffee morning, a sponsored walk around the town or a swim in the local pool to raise funds for research into Neuroacanthocytosis. Whatever you do it does not have to occur on the 29th of February 2020 but should be in the name of Rare Disease Day.

There is lots of information and many examples of fundraising events from around the world on the Rare Disease Day website. When you have organised your event please send the details to Ginger at the Advocacy and it will be added to our site there. Thank you for being a part of Rare Disease Day and making a difference for people living with a rare disease.