We're currently planning a new volume of the newsletter dedicated just to patient news, which means we are keen to hear from you. NANews Special Patients Volume I, which appeared in 2012, received many positive responses from around the world. It is time to repeat this effort as we continue to hear of new patients, families and carers from all continents who are affected by neuroacanthocytosis (NA).

The next issue of NA News will again be devoted to their stories, including the therapies and the pastimes they benefit from plus photos if they so wish. In this issue we will also remember patients who have sadly died.

If you know someone who may be or has been affected by NA, please contact me at mailto:ginger@naadvocacy.org. See also the symptoms described on naadvocacy.org and let your doctor know about the free blood test that may offer a confirmed diagnosis. If you would like to report the death of an NA patient, either recently or in the past, please do not hesitate to get in touch.