Rare Disease Day is marked in the calendar each year on the last day of February, so with 2024 being a leap year, it is on Thursday, 29 February.

The common theme for 2024 is that although rare conditions are individually rare, they are collectively common. Therefore, there is awareness power in sharing not only the statistics related to living with a rare condition, but it’s extremely important to tell the stories of the people behind them, to make them heard as far and wide as possible.

Where can you find us that day/week?

1. On our own social media.
2. On others’ social media, such as rare disease umbrella organisations:

• taking over for an hour the main channels of Rare Revolution Magazine to raise awareness about the NA syndromes
• sharing the #storiesbehindthestats as part of the Rare Disease Day UK.  

3. In person at the Rare Disease Day Westminster Reception
4. Online

• 'Navigating though Rarity' Webinar (in German)
• ‘Joint Nation Online’ event on Monday, 4 March – for those who can’t attend the events organised in person across the UK.

Join us and help spread the word! Every single share and like will support Advocacy for Neuroacanthocytosis Patients (NA Advocacy) and NA Advocacy USA!