Get ready for Rare Disease Day 2019

Since 2008, Rare Disease Day is celebrated globally each year and will next take place on 28 February 2019. This year’s theme is Bridging Health and Social Care, which will focus on ways to facilitate the coordination of patient healthcare needs with medical and other support providers. This, of course, is a topic of tremendous importance to rare disease patients, family and caregivers.


The Advocacy is looking forward to recognizing Rare Disease Day 2019 by organizing and promoting fundraising events. The assistance of our supporters is crucial to achieving a successful outcome. We are therefore sending a shout-out to all would-be hosts to take part in multi-venue (multi-national!) NA Coffee Morning events. See this article for more information.


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