NA News Issue 46 - 4 November 2024
Neuroacanthocytosis information and research
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NA News Issue 45 - Inspiring Story of Eric Koning | New $100k grant | 18th VPS13 Forum | 17th VPS Forum | Voice Workouts | Wellbeing Hub | Toe-Tapping XK Patient | Genetic Testing | 5k running challenge | Rare Disease Day 2024 update
11 Jul 24
NA News Issue 44 - Rare Disease Day 2024 | Echoes from Int Symposium NA Syndromes | Updates from the VPS13 Forums | The Neuroacanthocytosis Project | Networking = Advocacy | An Aerial View of Life | Patient News | Acanthocytes
13 Feb 24
NA News Issue 43 - 11th Int'l Symposium | 2nd Paper Published | Ginger Honored with Service Award | Nomenclature Changes | VPS13 Forum | Working on New Websites | Patients' Views, Suggestions and Stories
06 Nov 23
NA News Issue 42: Glenn Irvine Prize Winner | NA Grant Leads to New Cellular Model | New Paper Published | Register for 11th Int. Meeting | VPS13 Forum | NA Patients Celebrate Life & Milestones | Meet NA's Spanish Translator | New Charity Manager
21 Jun 23
NA News Issue 41 - 11th International Meeting on NA | Glenn Irvine Prize | Acanthocytes doubts | NA-USA & RARE-X partner | Fundraising & Patient News | NA Seeks Translators
17 Mar 23
NA News Issue 40: Adrian Danek Webinar | Forums feature NA Research | Translators Needed | New NA Trustee | Social Media News | Trustees Meet Patients | Patient Art | Rare Disease Day '23 | NA Meeting Date
21 Nov 22
NA News Issue 39: New Charity Manager | 11th International Meet | New Trustee | Research - Animal Models & Blood Cells | Research Collaborations | NA USA | Patient News | Carers Corner
23 Jun 22
NA News Issue 38: Rare Disease Day 2022 | NA Patient Survey Results | Seeking Trustees | Communication Tips | Mike Speaks Out | Blood Donation | Annual Report | Spotlight: Dr. Tetlow | Patient News
28 Feb 22
NA News Issue 37 In Memoriam | Financial Respite Help | Unlatch more Match | Sleep Issues - A Patient's View | NA People | Research Update | Patient & Forums News
28 Nov 21
NA News Issue 36
14 Jul 21
NA News Issue 35
20 Nov 20
NA News Issue 34
03 Jul 20
NA News Issue 33
17 Dec 19
NA News Issue 32
16 May 19
NA News Issue 31:
26 Nov 18
NA News Issue 30: 9th NA Symposium | Rare Disease Day Celebrated | Patient Updates | Fundraising
06 Jul 18
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16 May 18
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04 Dec 17
NA News Issue 28
30 Mar 17
NA News Issue 27
06 Oct 16