More Attention to the Neuropathology of Neuroacanthocytosis Project
NA-USA funded brain research garners attention in a scientific journal
With the deepest heartfelt gratitude to those patients and families who have donated tissue to this effort. While the initial study focused on VPS13A syndrome, the next will study tissue from XK patients.
This research project was funded by generous donors to Neuroacanthocytosis Advocacy USA. More information on the results of studies to date may be found in a prior NA News at: NA News 43 article.