The Advocacy for Neuroacanthocytosis Patients recently announced it is seeking nominations for the Glenn Irvine Prize, named in honor of the co-founder of The Advocacy.

Jae-Sook Park, a research scientist at Stony Brook University in upstate New York, was the winner of the first Glenn Irvine Prize in 2019. Recently she took some time to reveal how the prize has impacted her research.

NA researchers cast doubt on recent discovery of acanthocytes in Huntington disease patients.

You won't want to miss the upcoming VPS13 Forum on "Muscle and Nerve" on March 27th. Read on to learn about the upcoming forum and two prior forums.

Check out our new VPS13 Forum logo to the right, courtesy of Kevin Peikert.

Bob Metzger, NA-USA board member and McLeod syndrome patient, files this report on the brand new partnership between NA-USA and Rare-X.

Neuroacanthocytosis Advocacy USA is pleased to share a brief update on recent progress on the Neuropathology of Neuroacanthocytosis project.

Drew Smith recently combined his love of sports with his talent for fundraising and his heart for his fellow ChAc patients around the world.

Neuroacanthocytosis Advocacy USA, Inc. is pleased to welcome Ricky Ditzel to its Board of Directors. Read on to learn more about him in his own words.

Mike Koutis, shown here with fans Candi DiMarzio and Kristy Mohr, loves life. While life with ChAc is a constant struggle, with a desire to inspire others he recently posted this post on Facebook and agreed to allow us to share it here.

The Advocacy continues to seek translators to aid with NA News and other activities.